
I have a sort of confession....
Something that has been part of my world for a while- yet it just hit me today.
WHAM
My daughter has apraxia.
A-P-R-A-X-I-A- I keep yelling this word over and over again in my head- Maybe if I yell loud enough it will go away. But it won't go away- at least not for a while- maybe not ever. But I cannot let myself think about that- but I am thinking about THAT.
I know that there are more involved disabilities/disorders out there. I know that she has a more mild case (not correct terminology- but lack of better)... I know that her prospects are probobly good. I know that I am doing good by her. I have worked with people of all ages with all kinds of disabiliites. I know that I could have it so much worse.... but I do have it so much worse- because this is MY child... this is MY issue.... this is MY responsibility. And I feel like I need to fix it. I know I can't just fix it. But I'm the MOM- that's my job. But I can't.
So it hit me today....
that my daughter has apraxia...
today after therapy.
After therapy that has been going on for over a month.
After the therapist handed me picture symbols to use... I've used picture symbols for years ( at work, at school, etc). I even own the software.
But these picture symbols were for me--- worse they were for Her. They were to be used in our everyday stuff--- not just wow what a cute/good/professional job I did making a communication board for someone else. This time--- someone made one for us.
So it hit me. HARD...
I am I feel raw... and deflated... and defeated... by life.
I know that it will go away and tomorrow I will return my child's warrior.
But today I am letting it all pour out... all of it.... I think I need to....
She wasn't an easy pregnancy... (easy birth- thank God)... I walked on egg shells from my 20th week on- hoping that she would go full term... hoping she would survive. We named at 20 weeks, so that if anything happened to her- the kids would have a name to go with her... so I would have a name to go with her. We named her to give her spirit strength....
All of that has nothing to do with this- yet it has everything to do with this. Because I think I am finally letting the feelings that I held so quiet in my heart- for these past three years. I was strong... I knew she would live... I knew that we would both survive.... and in self-preservation I just did not let my thoughts go there. I knew God had a plan for us--- and that was to live--- I felt it in my heart.
So now--- we have another road to travel. Today I am sitting in the mud of it all --- feeling very sorry for myself.... feeling sorry for her.... just feeling...
Tomorrow is another day--- with another attitude.